5 things Google won’t tell you about life with Lupus

In honor of Lupus Awareness Month, here is some information you won't likely learn from typing "Lupus" into your search bar: Everyone’s experience is different. Really, really different. SLE (as distinct from other forms of Lupus) is a systemic disease, which means it can affect ANY part of your body. There are symptoms and complications … Continue reading 5 things Google won’t tell you about life with Lupus

What I’ve lost to lupus: a partial inventory

Chronic illnesses take so much from those who live with them. For me, the experience of adapting to life with incurable autoimmune disease has often been one of grief. (While some losses have truly been gifts, that is a topic for a different post.) This list includes several of the significant losses that I carry … Continue reading What I’ve lost to lupus: a partial inventory

The most supportive thing my wife has ever said about my illness

One of the hardest things about life with autoimmune disease for me is that when I’m in a flare, I don’t feel like myself. And it’s not just that I’m stuck in bed and get cranky.  One of my primary symptoms is brain fog. If you’re not familiar with the term brain fog, it’s basically … Continue reading The most supportive thing my wife has ever said about my illness