I've written before about what I've lost to Lupus. Now I want to share a little of what Lupus has offered me: Knowledge of my body I know my body better than most people around me know theirs. I have the numbers from hundreds of lab results, yes, but that isn’t really the knowledge that … Continue reading 3 unexpected gifts of Lupus
5 things Google won’t tell you about life with Lupus
In honor of Lupus Awareness Month, here is some information you won't likely learn from typing "Lupus" into your search bar: Everyone’s experience is different. Really, really different. SLE (as distinct from other forms of Lupus) is a systemic disease, which means it can affect ANY part of your body. There are symptoms and complications … Continue reading 5 things Google won’t tell you about life with Lupus
Why I love Easter Vigil
Below is my recorded sermon from this year's Easter Vigil at St. Andrew's. You can find the lectionary texts here, but if you're familiar with the story of Christ's resurrection, you'll be able to follow the sermon without having read the texts. The song referenced in the sermon is "Rescue" by Lauren Daigle. You can … Continue reading Why I love Easter Vigil
What I’ve lost to lupus: a partial inventory
Chronic illnesses take so much from those who live with them. For me, the experience of adapting to life with incurable autoimmune disease has often been one of grief. (While some losses have truly been gifts, that is a topic for a different post.) This list includes several of the significant losses that I carry … Continue reading What I’ve lost to lupus: a partial inventory
The Way of Love: Learn
The Episcopal Church has recently released a Rule of Life for Christians called the Way of Love. The Way consists of 7 steps: Turn, Learn, Pray, Worship, Bless, Go, and Rest. During the season after Epiphany, my colleague and I have been offering sermons on these steps, one each Sunday. Below you can find my … Continue reading The Way of Love: Learn
3 products that save my skin
Since my overzealous immune system attacks the glands that provide moisture to my skin, I’ve tried quite a few products that claim to put an end to flaky, tight, itchy skin. Most of them have failed, but here are 3 that I’ve found to actually make a difference, all made with ingredients I feel good … Continue reading 3 products that save my skin
Hannah’s trust
Sermon offered November 18, 2018, at St. Andrew's. I love Hannah's story and was grateful for the opportunity to preach on it. You can find the readings for the day here. (Choose the Track 1 readings.) Bonus: Check out this wonderful song based on this passage, from Torah scholar-fronted band Girls in Trouble.
Frog in a pot
You know how they say that a frog dropped in hot water will jump out, but, if it’s placed in room temperature water, it will stay there while the temperature rises, not noticing it’s getting too hot, until it dies? I’ve heard this isn’t true, but I can see myself in that frog all the … Continue reading Frog in a pot
3 Products that Save Me Spoons
Thanks to medication and lifestyle changes, my health is SO MUCH BETTER now than it has been in years. But that doesn't mean I get to forget about my illness or that I have spoons to waste. (If you're not familiar with spoon theory, you can read about it here, but in short: spoons = … Continue reading 3 Products that Save Me Spoons
The most supportive thing my wife has ever said about my illness
One of the hardest things about life with autoimmune disease for me is that when I’m in a flare, I don’t feel like myself. And it’s not just that I’m stuck in bed and get cranky. One of my primary symptoms is brain fog. If you’re not familiar with the term brain fog, it’s basically … Continue reading The most supportive thing my wife has ever said about my illness
