What I’ve lost to lupus: a partial inventory

Chronic illnesses take so much from those who live with them. For me, the experience of adapting to life with incurable autoimmune disease has often been one of grief. (While some losses have truly been gifts, that is a topic for a different post.) This list includes several of the significant losses that I carry … Continue reading What I’ve lost to lupus: a partial inventory

Hannah’s trust

Sermon offered November 18, 2018, at St. Andrew's. I love Hannah's story and was grateful for the opportunity to preach on it. You can find the readings for the day here. (Choose the Track 1 readings.) Bonus: Check out this wonderful song based on this passage, from Torah scholar-fronted band Girls in Trouble.

The most supportive thing my wife has ever said about my illness

One of the hardest things about life with autoimmune disease for me is that when I’m in a flare, I don’t feel like myself. And it’s not just that I’m stuck in bed and get cranky.  One of my primary symptoms is brain fog. If you’re not familiar with the term brain fog, it’s basically … Continue reading The most supportive thing my wife has ever said about my illness

41 things I’ve learned since my diagnosis

The pros and cons of pretty much every EWG approved sunscreen. What SPF actually indicates. (Hint: it is NOT the amount of time you can safely be in the sun. Though hard and red experience had already taught me that wasn’t true.) How freeing sun-protective clothing can be. What a nephrologist is. (I should have … Continue reading 41 things I’ve learned since my diagnosis